EXPLORING THE IMPACT OF INTERVENTIONS ON THE PSYCHOLOGICAL WELL-BEING OF PARENTS OF CHILDREN WITH DOWN SYNDROME IN KHYBER PAKHTUNKHWA, PAKISTAN

Authors

  • Sidra Ali College of Home Economics, University of Peshawar-Pakistan
  • Syeda Kaniz Fatima Department of Human Development and Family Studies, University of Peshawar-Pakistan

Keywords:

Down syndrome, Family Interventions, Khyber Pakhtunkhwa

Abstract

Background: Despite the significant advancements in medical and educational fields, children with Down syndrome and their parents still encounter numerous challenges in underdeveloped countries like Pakistan, particularly in the Khyber Pakhtunkhwa area. This study hypothesized that prolific intervention programs instituted to support parents in dealing with these challenges will experience a drop in parental stress levels. Methods: Cross-sectional descriptive research was carried out using a Purposive sample approach between 15th June 2020 and 05th January 2023 to evaluate the impact of several intervention programs for parents at different special education centers in Mardan, Charsada, Naushera, Swabi, and Peshawar. The research included 105 parents who were approached through these intervention programs and the success of these programs were evaluated across five dimensions: Social, psychological, cognitive, religious, and educational aspects. The interview-based parenting Intervention Questionnaire (IBPIQ) was used to gather information concerning the efficacy of these interventions, and the parental stress scale was administered to measure parental stress. Results: The results of the study showed that there is no significant correlation between Parental intervention programs and reduced levels of parental stress. While a weak positive correlation (social impact: 0.212) was found whereas psychological p-values = 0.065, educational p-values = -0.058, cognitive p-values = -0.067, and religious impact p-values =0.101 were non-significant. Conclusion: After an extensive review of various intervention programs for parents of children with Down syndrome in Pakistan, this study concluded that these Intervention programs did not significantly benefit the parents. As a result, stress levels among Down syndrome’s parents did not lessen, regardless of their involvement in these interventions.

Author Biographies

Sidra Ali, College of Home Economics, University of Peshawar-Pakistan

 

Syeda Kaniz Fatima, Department of Human Development and Family Studies, University of Peshawar-Pakistan

 

References

Ahmed Hammad M, Shaaban Awed H. (2020). Prevalence of cyber bullying and traditional bullying and their relationship to self-esteem among hearing-impaired adolescents. Humanit Soc Sci Rev.; 8:167–78.

Al-Fawaer, A. G. (2015). Evaluate early intervention services of children with special needs in Oman by their parents. J Arab Child, 65, 35-53.

Allen, G. (2011). Early Intervention: The Next Steps, an Independent Report to Her Majesty's

Badghaish, M. K. (2014). Obstacles of Early Intervention Programs in Arab Countries and Constraints that Face Persons with Special Needs. http://etec9.blogspot.com/2014/03/blog-post_2913.html

Cardon, T. A., & Wilcox, M. J. (2011). Promoting early childhood education and development through a federal-state partnership: The child care and development fund. Early Childhood Education Journal, 39(6), 365-373.

Chicoine, B., & Mc Guire, D. (1997 December). Longetivity of a Woman with Down syndrome: A case study. Mental Retardation, 35(6), 477–479. http://dx.doi.org/10.1352/0047-6765(1997)035<0477:loawwd>2.0.co;2

Cuskelly, M., Jobling, A., & Buckley, S. (2013). Families of children with Down syndrome: An integrative review of factors related to distress. Journal of Policy and Practice in Intellectual Disabilities, 10(1), 7-19.

Dumas, J. E., Nissley, J., Nordstrom, A., Smith, E. P., Prinz, R. J., & Levine, D. W. (2011). Home-based parenting support for rural, low-income families with toddlers. Journal of Primary Prevention, 32(3-4), 147-160.

Feinberg, M. E., Jones, D. E., Hostetler, M. L., Roettger, M. E., Paul, I. M., & Ehrenthal, D. B. (2016). Couple-focused prevention at the transition to parenthood, a randomized trial: Effects on coparenting, parenting, family violence, and parent and child adjustment. Journal of Child and Family Studies, 25(8), 2479-2494.

Fidler, D. J., & Nadel, L. (2007). Education and Children with Down syndrome: Neuroscience, Development, and Intervention. Developmental Disabilities Research Reviews, 13(2), 129-137. doi: 10.1002/ddrr.11

Hosseini, S., Rajati, F., Ashtarian, H., Salari, N., Ghanbari, M., & Naghibifar, Z. (2018). Quality of life predictors in physically disabled people. Journal of Education and Health Promotion, 7(1), 61. https://doi.org/10.4103/jehp.jehp_115_17

National Down syndrome Congress. (1998). Pediatric Physical Therapy, 10(2), 86. https://doi.org/10.1097/00001577-199801020-00021

Gallagher, P. A. (2003). Respite care for families of children with developmental disabilities: A comprehensive review of the literature from 1990-2002. Journal of Developmental and Physical Disabilities, 15(3), 177-232.

Guo, S., Bao, X., Zhou, H., Lu, X., & Gao, X. (2020). The effectiveness of early intervention on parents and their children: A randomized controlled trial. Journal of Child and Family Studies, 29(7), 1915-1927.

Hodapp, R. M., Ly, T. M., & Fidler, D. J. (2014). Handbook of parent training: Helping parents prevent and solve problem behaviors. Routledge.

Khan, H. A., Naqvi, S., & Zahid, S. (2021). The Virtual Shift-Early Childhood Intervention Therapies for Pakistani Children with Down syndrome During COVID-19. Review of Disability Studies: An International Journal, 17(3).

Lee, Y. C, & Gossop, M. (2016, April). Meta-analysis of quality of life in children and adolescents with ADHD: By both parent proxy-report and child self-report using PedsQL. Research in Developmental Disabilities, 51–52, 160–172. https://doi.org/10.1016/j.ridd.2015.11.009

Leininger, L. J., Roberson, P. N., & Fritz, A. M. (2015). Early intervention for children with Down syndrome: A review of the literature. Topics in Early Childhood Special Education, 35(4), 227-241. doi: 10.1177/0271121415582507

McWayne, C. M., Melzi, G., Limlingan, M. C., & Schick, A. (2016, July). Ecocultural patterns of family engagement among low-income Latino families of preschool children. Developmental Psychology, 52(7), 1088–1102. https://doi.org/10.1037/a0040343

Mousavi, S. F. (2020, December 3). Psychological Well-Being, Marital Satisfaction, and Parental Burnout in Iranian Parents: The Effect of Home Quarantine during COVID-19 Outbreaks. Frontiers in Psychology, 11. https://doi.org/10.3389/fpsyg.2020.553880

Pakjouei S, Aryankhesal A, Kamali M, Seyedin SH. Experience of people with physical disability: Mobility needs during earthquakes. J Educ Health Promot. 2018;7:80.

Parameswari, S., & Eljo, J. (2016). A study on psychological wellbeing among the parents of children with Intellectual and Developmental Disabilities. Social Science.

Pargament, K. I., Koenig, H. I. G., & Perez, L. M. (2000). The many methods of religious coping: Development and initial validation of the RCOPE. Journal of Clinical Psychology, 56, 519-543.

Parrish D, Phillips G. (2003). Developing an Early Childhood Outcomes System for OSEP: Key Considerations. Washington, DC: American Institutes for Research.

Phillips, B. A., Conners, F., & Curtner-Smith, M. E. (2017, September). Parenting children with Down syndrome: An analysis of parenting styles, parenting dimensions, and parental stress. Research in Developmental Disabilities, 68, 9–19. https://doi.org/10.1016/j.ridd.2017.06.010

Rajati F, Ashtarian H, Salari N, Ghanbari M, Naghibifar Z, Hosseini SY. Quality of life predictors in physically disabled people. J Educ Health Promot. 2018;7:61.

Robles-Bello, M. A., & Sánchez-Teruel, D. (2022). The Family-Centred Practices Scale: Psychometric properties of the Spanish version for use with families with children with Down syndrome receiving early childhood intervention. Child: Care, Health and Development.

Rodriguez, C. M., & Green, A. J. (2016). Parent support groups for families of children with autism: A review of the literature. Journal of Autism and Developmental Disorders, 46(12), 3805-3817.

Rueda, M. R., Moneta, L., & Chen, H. (2015). Examining the link between social support and student persistence in higher education. Journal of College Student Retention: Research, Theory & Practice, 17(4), 436-452. https://doi.org/10.1177/1521025115577622

Shire, S. Y., Goods, K. S., Shih, W., Distefano, C., Kaiser, A. P., Wright, C., & Mathy, P. (2018). Parents' involvement in early intervention for children with autism spectrum disorders: The role of parent-mediated communication. Journal of Autism and Developmental Disorders, 48(5), 1735-1748. doi:10.1007/s10803-017-3423-8

Summers JA, Marquis J, Mannan H, Turnbull AP, Fleming K, Poston DJ, et al. (2007). Relationship of perceived adequacy of services, family-professional partnerships, and family quality of life in early childhood service programs. Int J Disabil Dev Educ. 54:319–38.

Turnbull AP, Summers JA, Turnbull R, Brotherson MJ, Winton P, Roberts R, et al. (2007). Family supports and services in early intervention: A bold vision. Journal of Early Intervention, 29(3), 187-206.Van Dyke, D.C.,

Van Riper, M. (2007, April). Families of Children with Down syndrome: Responding to “A Change in Plans” with Resilience. Journal of Pediatric Nursing, 22(2), 116–128. https://doi.org/10.1016/j.pedn.2006.07.004

Williams, B. T., Gray, K. M., & Tonge, B. J. (2012, August 7). Teaching emotion recognition skills to young children with autism: a randomized controlled trial of an emotion training program. Journal of Child Psychology and Psychiatry, 53(12), 1268–1276. https://doi.org/10.1111/j.1469-7610.2012.02593.x

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Published

2024-02-14

Issue

Vol. 36 No. 1 (2024): JOURNAL OF AYUB MEDICAL COLLEGE ABBOTTABAD

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ORIGINAL ARTICLE

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